Hello, I’m Christy from sunny San Diego, California. I was the first in my family to be diagnosed with Charcot Marie Tooth at the tender age of 16. CMT is a progressive disease that affects the lining of the nerves controlling the outer limbs.
A necessary evil is something that must be done or accepted in order to achieve a better outcome. Basically, it’s a scary and/or unenjoyable act that sucks in the moment, but the consequences of not doing it can suck way more than the act itself.
Whether you wear leg braces or not, people with problem feet are prone to callouses. They can make walking painful and feel awful. It is hard for me to file my own feet as I also have trouble with my hands. Before I bought one of these rechargeable electric files, I was going to the podiatrist and pedicure places regularly.
This is the one I bought and the button was not hard for me to push. There are many other brands that may work better for you.
Nothing screams the start of summer more than a backyard barbecue! With Memorial weekend fast approaching, patio furniture everywhere, is being cleaned and uncovered and the smell of charcoal is beginning to fill the air. Whether it’s a graduation party or casual gathering with friends, an evite to some type of outdoor barbecue is imminent; You may even want to check your inbox right now.
Until recently, fashion and disability was pretty much an oxymoron. The clothing available for people with physical challenges called “health wear” was found in home medical supplies stores next to other functional items like incontinence supplies and shower seats.
December 21, 2015 is my CMT diagnosis day…. I currently have significant muscle atrophy in my calves, lower arms, and hands, muscle fasciculations throughout my body, I have bi-lateral foot drop, my toes no longer support my body and are painfully beginning to claw, and I am currently on my second set of AFO’s which are cumbersome and incredibly uncomfortable.
You are going to LOVE DIY frayed denim jeans! It’s one of my favorite ways to repurpose jeans and has added a lot to my wardrobe without a big expense. One of the easiest ways to update an old pair of jeans is to cut off the bottom seam. Some skinny jeans taper close to…
I started Trend-Able to empower women with invisible physical disabilities to look and feel their best in order to live their best lives. I struggled with low self esteem as a young person with invisible disabilities and have made it my mission to help others learn how to accept their perfections and focus on their strengths.
September is back to school time . If you’re like many moms I know and spent the summer working unpaid overtime as camp directors & uber drivers, you’re probably doing a little freedom dance every weekday morning. My dance ( if you could even call it that with my leg braces & sucky balance) is…
I am loving this summer and I just managed to sneak in a short late summer vacation.
Are you eeking out the last month of summer? Do you have a summer vacation planned?
Whether it’s a day trip in the car, a weekend at a lake house, or a luxurious destination on your bucket list, planning well regarding clothing and accessories can make or break it for those of us with chronic conditions.
I had one of those, Why didn’t I think of that?” kinda moments when I stumbled upon a photo of a pair of EZ Sox on Pinterest. My mom, when she was alive, would have loved this product. Due to Charcot Marie Tooth Disorder, the neuromuscular disease that I too inherited
Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non life-threatening, and sometimes superficial ”problems”…