Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non life-threatening, and sometimes superficial ”problems”…
I am loving this summer and I just managed to sneak in a short late summer vacation.
Are you eeking out the last month of summer? Do you have a summer vacation planned?
Whether it’s a day trip in the car, a weekend at a lake house, or a luxurious destination on your bucket list, planning well regarding clothing and accessories can make or break it for those of us with chronic conditions.
Lauren Rowe has battled Cystic Fibrosis since birth. When she was 19 she had less than 2 weeks left to live and received a double lung transplant. Although this transplant added years to her life, Lauren has been living off of 30% lung capacity.
Lauren created a not-for-profit organization in Australia called, “Gifted Life” to provide support for other transplant recipients. Lauren’s work was
When I was 15 years old, I went to ”fat camp”. It was the mid 80’s and after several failed attempts to lose weight via kids’ Weight Watchers’ meetings and ”the grapefruit diet”, I begged my mom to send me to this diet camp I had seen advertised in a teen fashion magazine. The camp,…
If you’ve read my blogs or follow trend-able on social media, then you already know that I love pilates and truly believe that having a strong core has helped me to slow down the progression of my disease and compensate for nerve damage. Since my ankles are fused (no motion), it’s hard to keep traditional…
Fitbits are obviously not a new thing, but I love my Fitbit HR2 as it keeps me moving. This one tracks not just my steps, but also my heart rate, calories and even hours and quality of my sleep. I can read text messages from the screen and I love that it says, ”Lainie, start…
A Transcutaneous electrical nerve stimulation (TENS) is a form of therapy that uses a low-voltage electrical current to relieve pain. It is connected to wires that conduct an electrical current through self-adhesive massage pads. These pads are placed on an area of pain, and a circuit of electrical impulses travel along the nerve fibers. TENS…
Relieve pain from muscle aches, stiffness, tightness, muscle spasms, and cramps. With these wraps that are designed to adhere to multiple locations of your body. There are 11 wraps in the box (3 for muscle pain therapy and 8 for joint pain therapy). They are thin enough to wear discretely under your clothing and flexible…
This pocket-size finger exerciser was designed to help musicians strengthen and maintain their strength and agility. It targets each finger and can be used to isolate muscles while watching tv.
I like to layer chokers with longer style necklaces and pendants. Instead of relying on someone to help me take my necklaces on and off, I buy these magnet attachment clasps. The clasps can be easily connected to any necklace or bracelet that has a traditional claw and loop clasp. Be sure to get a…
This six piece therapy putty set is perfect for strengthening the hands, increasing grip strength, improving fine motor skills and providing a stress-relieving sensory outlet. Each container holds three ounces of putty with different resistance levels for stretching, twisting, pulling and more.
If you have neuropathy, arthritis, or another invisible disability, you may experience cold painful hands. If you have been following along (learn more about me), then you know my hands are always cold and hurting. Finding pain relief for hands has been challenging until now. I found the perfect gloves to help with neuropathy. Designed…