When Lainie asked me to share my story about living with CMT I jumped at the chance. Then I realized that I have never shared my journey with having CMT. I struggled with this post for weeks because of that reason and decided that I will share with you all what I can.
As a person living with disabilities due to CMT Disorder, (read more about me here) the gifts I’ve curated below are ones that I want (hopefully my family reads my blogs?) and that I would be blown away to receive. Although some of the items may have a higher price tag than usual, their reported impact on some (real) reviewers lives has been life-changing. And, ‘‘tis the season to splurge, anyway, right?
I received two pairs of Revere Shoes at no charge & will get a small commission should you decide to use the links provided in this post. I created Trend-ABLE to help empower orthosis wearers & others with invisible disabilities to look & feel their best. All opinions are always my own.
I have an inherited neuromuscular disorder called Charcot-Marie-Tooth Disease (type 2A). Although CMT Disorder shows up differently for everyone, it generally causes a slow deterioration of a person’s peripheral nerves and muscle strength.
I was 31 years old, invincible and working full-time as a paralegal at a law firm, while going to nursing school full-time. Then one day, I started getting very tired easily and taking naps. I just figured I was exhausted from being so busy. It would be summer soon and I would be off from school. Well, summer came, and I felt no better.
Hello my name is Lainie and I have brain fog. Brain fog by dictionary definition is described as: “a usually temporary state of diminished mental capacity marked by an inability to concentrate or to think or reason clearly.”
Hello, I’m Christy from sunny San Diego, California. I was the first in my family to be diagnosed with Charcot Marie Tooth at the tender age of 16. CMT is a progressive disease that affects the lining of the nerves controlling the outer limbs.
Cori Fischer is a college sophomore studying to become an occupational therapist and a part-time intern at Trend-ABLE. Cori has a movement disorder that affects her legs and hands, making everyday tasks difficult. Despite her various physical challenges, Cori epitomizes positivity and perseverance.
We all have had days when it’s a struggle to put on our positivity pants (especially the kind with tiny zippers that are hard to grasp). Believe me, I get it…. Living with Charcot Marie Tooth Disorder (start here to learn more about me) is not all everyday rainbows and lollipops.
I was diagnosed with multiple sclerosis in 2013. MS had done damage to my brain and spinal cord affecting the left side of my body. My left leg couldn’t get me traveling very far or for very long. I developed an action tremor in my left arm and could not hold my bladder well when the urge came to use the bathroom fast. I was told to not drive long-distances or in poor conditions because my brain was a poor multitasker.
A necessary evil is something that must be done or accepted in order to achieve a better outcome. Basically, it’s a scary and/or unenjoyable act that sucks in the moment, but the consequences of not doing it can suck way more than the act itself.
Hi, my name is Cori. I am 19 years old and have a movement disorder that affects my legs, making walking difficult at times. Anyone who has spent more than a day using conventional crutches realizes they are a pain, in every definition of the word. Last year however, I discovered a pair of crutches called smartCRUTCH™- definitely a game changer!